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12/Dec/2023

This blog was written by Sass, a member of our Teen Talk group.

So. You want to know what life might look like at Uni with a musculoskeletal condition / arthritis? Well, as an individual whose bones/joints/various other systems dislike her, and who has completed her first year of uni, allow me to provide an insight into my experience in the hope it can help you too.

Right. Starting off strong with disability services. You should absolutely get in touch with any disability services on campus ASAP. Do. Not. Wait. They can help you navigate your Uni experience as a person with a chronic condition. I waited too long, and was ✨stressing✨ when in reality I could have fixed that by being on top of getting my accommodations earlier.

Ok, you’ve got your accommodations. What can you expect now?

For me, my hypermobility makes fine motor skills inconveniently painful, and so in line with this (and the general nature of Uni assignments often being digital) I was able to access my exams and tasks on a purely digital basis unless absolutely necessary. When I couldn’t use tech, I was provided with a student peer who scribed for me, and they were all the most lovely people. I also got extra time, which I rarely used if at all, but it’s good to have that up your sleeve regardless if you might need it.

Uni is also a very social time, and let’s be honest, socialising can be a little draining sometimes (where my introverts at?). The most important thing to remember here is that you should surround yourself with friends who are able to understand that you may require more rest or downtime, and/or that you may need activities to be modified for your enjoyment. Please, please, please, promise me you won’t burn yourself out by not speaking up about your needs. You deserve to be respected in all situations.

Managing the stress of exam season? Been there, and I’ll unfortunately continue to do that for the next two years! How I manage involves reading before bed to ensure I get good sleep, going on gentle walks, basically trying to reduce stress. I drink a lot of tea as well, and have the occasional hot choccie (gotta treat yourself, right?) and this helps me to relax. Also, I’ve been trying to stop myself from comparing my results to others. You are in a race ONLY WITH YOURSELF. Your only opponent is your personal best.

Ok, in summary:

respecting your needs + having reliable friends + not comparing yourself to others + getting accommodations ASAP = good year.

Now, in the words of Ignatius Loyola, go forth and set the world on fire. 🙂

 

If you’d like to write a blog to share with our community, please contact us

Contact our free national Help Line

If you have questions about managing your pain, your musculoskeletal condition, treatment options, mental health issues, or accessing services be sure to call our nurses. They’re available Monday to Thursday between 9am-5pm on 1800 263 265; email (helpline@msk.org.au) or via Messenger.

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12/Dec/2023

Our child has seen so many specialists and now they have been told to go to a kid’s physio. Are you thinking how will a physio help? Or how will this be any different to any other appointments we have? What do I tell my child they will be doing with them?

I am Nicole Pates, a Titled Paediatric Physiotherapist and director of Western Kids Health, a paediatric clinic in Perth Western Australia. I have been a Paediatric physio for over 13 years and these are the things I would like you to know about seeing a paediatric physio.

Children and teenagers, as we all know, are different from adults. Not just physically, but in all of their systems. Their brain is growing and their understanding of their body and how it works is constantly changing. Add into that school, friends and puberty and well, it can be a lot. Let alone managing chronic pain and fatigue on top of this. This is why it is important to work together with a physiotherapist who is experienced in working with kids and teens, who understands growth and development. You can search for a Titled or Specialist Paediatric Physiotherapist, who has undertaken extra study or experience in paediatrics, on the Australian Physio website https://choose.physio/find-a-physio

For families of children with persistent pain and / or fatigue, finding the right help can be tricky.  You can find a practitioner experienced in working in paediatric pain on the Australian Pain Society website  https://www.apsoc.org.au/Home/wcontent2/60

Once you have chosen a physiotherapist you will be *hopefully* be on your way to an appointment. You may be required to fill out some questionnaires or forms, prior to your initial appointment, depending on your reason for visiting the physiotherapist.

Typically, an initial appointment for children with chronic musculoskeletal / rheumatological conditions will be an hour or potentially more. For some families at Western Kids Health, we might sit down for 2 hours with not just physio but also OT and psychology. I encourage you to contact your chosen clinic to find out more about the first appointment. It is important to dress in clothes that are comfortable to move in and take a water bottle if needed.

Your physiotherapist may ask lots of questions in the first appointment. Not just about your child’s condition, symptoms, history, current team and limitations but also about their strengths, likes and future goals. Your physio will then watch how your child moves and plays, particularly the things they are having trouble with.

We love watching kids move and figuring out the different reasons as to why they might be having trouble or moving differently.

Being able to identify the activities that trigger your child’s symptoms, understanding their experience and watching how your child moves will enable your physio to work with you to formulate a plan. This plan should be collaborative and based around your child’s goals such as getting back to school, sport or hobbies. Having pain or fatigue can be so annoying and make moving and doing things difficult. But with chronic conditions, waiting for the pain or fatigue to go away before you get back into things can be an endless waiting game. Your physio will help you get back into doing things in a way that is meaningful, fun and supported.

Your physio may also provide education around:

  • Symptoms such as pain and fatigue and potential triggers / aggravators
  • Strategies on how to bring awareness to and strategies to minimise triggers and aggravators
  • Why your child may be experiencing pain.
  • How best support your child and their pain journey through supportive language in a progressive mindset

Your physio will also work hard to understand where your child’s physical function is at present and work out a plan to build on their activity level, strength, balance, movement control and most importantly, function over time. Your physio will support your child (and you!) with a plan for flare ups or set backs.

Other team members who your physio may recommend supporting you are

  • An Occupational Therapist, who assists your child to minimise the impact symptoms may have on sleep, school and relationships
  • A Dietician to understand your child’s nutrition needs whilst they are growing and create plans to support and meet these needs
  • A Psychologist to build coping skills and resilience and manage mental health symptoms such as low mood, stress or anxiety. This is important as often these symptoms are contributing to or exacerbating your child’s ability to engage in the physical rehab.

At Western Kids Health we run specialised groups in conjunction with the Arthritis & Osteoporosis Association of WA, including group hydrotherapy and strength and conditioning classes.

Hydrotherapy and physical conditioning for children with conditions like Juvenile Idiopathic Arthritis is safe and effective. Building strength through range is essential to keep your joints healthy. Your physio will work with you to help your child understand their body’s reactions and sensations as they try new activities. This will help your child build their capacity and understanding of body awareness. Your physio will help explore what movements and types of exercise work best for your child’s body, and most importantly making it fun!

You should see improvements over time with the right support and if you aren’t seeing those improvements, or your child isn’t reaching their goals, please discuss this with your therapy team.

Contact our free national Help Line

If you have questions about managing your pain, your musculoskeletal condition, treatment options, mental health issues, or accessing services be sure to call our nurses. They’re available Monday to Thursday between 9am-5pm on 1800 263 265; email (helpline@msk.org.au) or via Messenger.

More to explore


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11/Dec/2023

Axial spondyloarthritis (axSpA), whether with x-ray change (ankylosing spondylitis) or without x-ray change (non-radiographic axial SpA), is usually diagnosed many years after the onset of symptoms. Until diagnosis, chronic back pain is commonly experienced by people with this condition. This webinar will help you understand what axSpA is, how is it diagnosed and what are the common treatment and management approaches.

Our presenter: Dr Lionel Schachna

 

 

 

 

Dr Lionel Schachna is the director of rheumatology at the Austin Hospital. He runs the spondylitis clinic at the Austin Hospital which was established in 2004 and has treated more than 2000 patients with axial spondyloarthritis.


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07/Dec/2023

Sjogren’s disease is a multi-system autoimmune condition. Your immune system is designed to identify foreign bodies (e.g. bacteria, viruses), and attack them to keep you healthy. However in the case of Sjogren’s disease, your immune system attacks the glands in your body that make moisture (e.g. tears, saliva). In addition, Sjogren’s disease is associated with a number of co-morbidities that can be classified as extra glandular manifestations and this can include inflammatory arthritis, lupus-like rash, and other organ involvement. This webinar will provide the audience a greater understanding of Sjogren’s disease – what it is, how it is diagnosed and how it is managed.

Our presenter: Associate Professor Alberta Hoi

 

 

 

 

Associate Professor Alberta Hoi is a rheumatologist, leading lupus expert and translational researcher in Australia. Her research focusses on disease predictors and outcomes, registry design and implementation, quality of care and patient centred interactions. She received her undergraduate medical degree from Melbourne University (1996) and completed a PhD in immunology on a NHMRC scholarship from Monash University. Her current clinical activities include seeing patients at Monash Lupus Clinic, where she serves as the Clinic Head, as well as Complex Rheumatology Clinic at Monash Health, and Autoimmune Clinic at Austin Health. A/Prof Hoi plays an active role in a number of investigator-initiated lupus studies and clinical trials. Currently she is the chair and custodian of the Australian Lupus Registry and is also on the executive committee and a founding member of the Asia-Pacific Lupus Collaboration (APLC).


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07/Dec/2023

In this webinar, Dr Christian Barton will discuss the importance of prescribed exercise and getting active to help manage knee osteoarthritis. A number of myths will be discussed and busted. The numerous benefits of exercise for osteoarthritis and general health will be discussed, and guidance on how to address pain to get active again provided.

Our presenter: Dr Christian Barton

 

 

 

 

 

Dr Christian Barton is a physiotherapist with his research and practice focused on the management of persistent knee pain and osteoarthritis (OA), as well as running-related injury. He is based at La Trobe University’s Sport and Exercise Medicine Research Centre in Melbourne and he also leads numerous projects related to facilitating patient and health professional education via digital and social media through the ‘Translating Research Evidence and Knowledge’ (or TREK) initiative. Christian also leads GLA:D Australia, which aims to improve access to appropriate exercise and education to all Australians with OA.


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07/Dec/2023

Have you heard about the microbiome, but are not really sure what it is? Wondered about the connection between the microbiome and your health? This webinar will review the methodology that has been developed to evaluate the human microbiome, discuss some of the pivotal studies that have evaluated the role of the microbiome in a person’s health generally, as well as studies specific to what is known about the microbiome in inflammatory musculoskeletal disease.

Our presenter: Conjoint Professor Marissa Lassere

 

 

 

 

 

Conjoint Prof Marissa Lassere is a clinical rheumatologist and Senior Staff Specialist Rheumatologist at St George Hospital. She is also involved in numerous research, ethics and quality improvement committees at a local, state and national level. Marissa has a track record in performing national and international collaborative research in establishing longitudinal cohorts in inflammatory arthritis, patient-reported outcomes (PROs), imaging biomarker development/ evaluation, statistical modelling of biomarker evaluation and surrogate therapeutics including simulation studies, meta-analyses and their evaluation, health informatics, adverse event ascertainment and quality improvement. She has many publications and has been successful in obtaining research grants, including a Centre of Research Excellence in inflammatorily arthritis and two Medical Research Future Fund grants in adult and juvenile arthritis. She is also the current Chair of the Management Committee of Australian Rheumatology Association Database (ARAD). More recently she has undertaken research and has received grants on the microbiome in inflammatory arthritis and is affiliated with the Microbiome Research Centre, UNSW at St George Hospital.


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07/Dec/2023

This webinar is designed to provide consumers with a better understanding of osteoarthritis and an overview of the most up-to-date hand therapy options for treating and managing their condition.

Our presenter: Ms Jessica Cauchi

 

 

 

 

 

Jessica Cauchi is an Accredited Hand Therapist (as awarded by AHTA) and a Clinic Director at Melbourne Hand Rehab. Jessica has a passion for providing client-centred, holistic care that is evidence-based. Jessica works with and educates clients about how to best manage their hand injuries and conditions to enable them to reach their identified goals. Jessica has a special interest in treating clients who have osteoarthritis and assisting in ways to maintain their function and participation in tasks they love to do.


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07/Dec/2023

Living with a chronic health condition can, at times, feel like your condition is in control. Would you like to find out how to put yourself back in the ‘driver’s seat’ with your condition being a ‘passenger’? This webinar will give you some tips and strategies on how to how to effectively communicate with your healthcare providers; how to plan ahead for your appointments; and advice about being aware of your emotions’ impact on your information processing and decision-making. Understanding more from the perspective of your health professionals and what they are aiming to achieve when working with you will also be covered.

Our presenter: Ms Bridget Scanlon

 

 

 

 

Bridget is a psychologist who is committed to working from the biopsychosocial model of health. She is passionate about helping clients understand the mind–body connection and developing their confidence to cope independently. Bridget works in a multi-disciplinary team at Empower Rehab where they assist people experiencing persistent pain to do more. With special areas of interest in chronic pain and healthy ageing, Bridget values and enjoys working collaboratively with other members of the client’s treating team to ensure the client can achieve realistic, functional goals.


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19/Sep/2023

Rattle Ya Bones Day – A National Day of Awareness for all muscle, bone and joint conditions, held every year on Halloween. 🎃 🦇👻

This year’s theme is: Get informed. Get supported. Check out the Rattle Ya Bones Day web page on how you can get involved!


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06/Sep/2023

Let’s take advantage of the warmer days and and look at how we can sweep away the winter cobwebs and make ourselves sparkle this spring!

  • Unplug. We’re always connected these days, immersed in the news, social media, video chats, work/school, and phone calls. We’re never far away from a phone, tablet or computer – and we need to step away. Schedule time to put it all aside: perhaps after dinner, or for an hour during your day, or for your entire Sunday. Whatever works for you and your commitments. Just make sure you take some time away from the digital world, step outside and breathe in the fresh, sweet-smelling spring air.
  • Say no. We’re wired to want to please others, so we often find it difficult to say no. But that can make us become overwhelmed and stressed with the number of commitments we have. That’s why we need to look after ourselves and start saying no. The next time someone asks you to do something, give yourself a moment. Don’t answer immediately with an automatic ‘yes’. Ask yourself if this is something you want to do. Are you able to do it – physically and mentally? Do you have the time to do it? Will it bring you happiness? If you answered no to these questions, then you should say no to the request. You may disappoint some people, and they may be a little unhappy with you. But you need to be true to who you are and stand firm. And don’t feel the need to give detailed reasons for saying no. Saying no is really hard, but it will become easier.
  • Change your routine. Do you feel like you’re stuck in a rut? I know it feels like Groundhog Day at times! So look at your routine. What can you change? Take your work/school commitments out of the equation for now. Do you spend your evenings on the couch? Or weekends doing the same old things? Stop and really think about what you would actually ‘like’ to do with your free time. Go for a bike ride? Take up painting? Visit a new place each week? Find things that you enjoy, and fill you with anticipation and happiness, and do them. Now think about your work routine. There may not be things you can change about work – but why not put on your favourite outfit/earrings/shoes/lipstick – even if you’re working from home. Or use some new stationary or bit of tech. It’s amazing how these small changes give us a mental boost.
  • Focus on the basics – eat well, move, sleep – repeat. This time of the year we have access to amazing fresh produce that’s just crying out to be made into delicious salads and stir fries. The days are getting longer and warmer so we can get outside more for our exercise. We can shed the heavy blankets and adjust our sleep habits. There’s never been a better time than now to focus on these basics and make improvements if needed. And finally, make sure you’re staying hydrated by drinking enough water each day.
  • Surround yourself with positive, upbeat people. Positivity and happiness is contagious. These people will inspire you, make you feel good about yourself and the world in general. Too much contact with negative people (in person and via social media) does the opposite and makes the world a gloomy place. So seek out the happy, positive people and enjoy their company. And if you can, ditch the negative people.
  • Take some time out to relax. Try strategies like mindfulness, visualisation and guided imagery. Or read a book, listen to music, walk the dog, create something, play a computer game, have a bubble bath or massage. Whatever relaxes you. And make sure you do these things on a regular basis. They’re not an indulgence – they’re a necessity and vital to our overall happiness and wellbeing.
  • Let’s get serious – sugar, fats, alcohol and drugs. Many of us seek comfort in sugary and/or fatty foods more than we’d like. Or we’ve been using alcohol and/or drugs to make us feel better. Over time this becomes an unhealthy habit. So it’s time to get serious. Ask yourself if your intake of these things has changed or increased? If it has – what do you need to do to fix this? Can you decrease their use by yourself? Or do you need help from your family, doctor or other health professional? The sooner you acknowledge there’s a problem, the sooner you can deal with it.
  • Nurture your relationships. It’s easy to take the people around us for granted, but these people support and care for us day in and day out. They deserve focused time and attention from us. So sit down and talk with your kids about their day. Make time for a date night with your partner and cook a special meal to share together. Call or visit your parents and see how they’re really doing. Reminisce with your siblings about childhood antics and holidays. Our relationships are the glue that holds everything together for us – so put in the effort. You’ll all feel so much better for it.
  • Quit being so mean to yourself. You’re valued and loved. But sometimes we forget that. And the negative thoughts take over. “I’m fat”, “I’m hopeless”, “I’m lazy”, “I’m a burden”. If you wouldn’t say these things to another person, then why are you saying them to yourself? Ask yourself why you even think these things? And how can you reframe these thoughts? If, for example, you tell yourself you’re fat – are you actually overweight or are you comparing yourself to the unrealistic media image of how a person should look? And if you do know you need to lose weight, and want to make that happen, put those steps in motion. Talk with your doctor for some guidance and help. And congratulate yourself for taking action. And as you make these changes be kind to yourself along the journey. There will be stumbles, but that’s expected. You can pick yourself up and move on. Kindly.
  • Throw away the ‘should’s. This is similar to the negative self-talk…we need to stop should-ing ourselves to death. This often happens after we’ve been on social media and seen someone’s ‘amazing’ life. You start thinking “I should be better at X”, “I should be doing X”, “I should be earning X”, “I should look like X”. Remember that most people only put their best images on social media, so everyone’s life looks wonderful. But you’re just seeing the superficial, filtered person, not the whole, and they probably have just as many insecurities as the rest of us. Instead of thinking “I should…”, be grateful for who you are and what you have.
  • Be thankful and grateful. You exist! And yes, the world is a strange and sometimes frightening place at the moment, but you’re here to see it. People love and care for you. Focus on the people in your life and the things you’re grateful to have in your life. Celebrating these things – both big and small – reminds us why we’re here. To bring joy and happiness to those around us, and to make the world a better place.

(Originally written and published by Lisa Bywaters 2020).

Call our Help Line

If you have questions about things like managing your pain, your musculoskeletal condition, treatment options, telehealth, or accessing services be sure to call our nurses. They’re available weekdays between 9am-5pm on 1800 263 265; email (helpline@msk.org.au) or via Messenger.

More to explore




Musculoskeletal Australia (or MSK) is the consumer organisation working with, and advocating on behalf of, people with arthritis, osteoporosis, back pain, gout and over 150 other musculoskeletal conditions.

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